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This forum is dedicated to helping the parents of Little Lion, a toddler recently diagnosed with Atypical Teratoid Rhabdoid Tumor (ATRT) and undergoing treatment on the Dana Farber IRS-III protocol, learn everything they can about therapies that will lead their son back to full health. Of particular interest are alternative therapies that will enhance the effectiveness and minimize the side effects of the traditional therapies of chemotherapy, radiation, and surgery.
We initially started researching alternative therapies on our own by reading books, conducting internet searches, and contacting those we know (or have heard of) who have have successfully battled cancer (we feel that the stories of these individuals may be our best source of what alternative therapies have validity and should be considered for Little Lion). The volume of information became overwhelming very quickly, however, especially when it came to keeping stories straight (who did/said what and what was the result). It also was a little troublesome to categorize and store the information in a logical framework for future reference.
This forum will help solve these two issues by allowing all interested parties to view and participate in a discussion of each alternative therapy and share their experiences and insight where appropriate. It will also categorize the information in a frame of reference that will be easy draw from in the future. Further, it will provide an additional tool for those battling ATRT to use down the road.
Please feel free to share your experiences, provide recommendations, and propose new topics for discussion. If you have trouble joining the forum because you don't know the answer to the authentication question, please email Micah at micah01 (at) gmail.
This isn't just for Little Lion - this forum is for all those who are or will ever battle ATRT or other cancers. Please join us in taking a step towards eliminating this nasty disease by sharing on this forum.
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